No. 3: Fly little girl, fly

A day old,

the girl is taken by air to Stockholm.

Carried in a baby bag.

A nurse is flying there with her.


The mother and the father

goes home from the hospital.

Without the girl.


It will take until October

before she comes home

to her parents

for the first time.


She gets a golden heart in memory of that day.

The date is engraved.

October 23, 1965.

She is three and a half months old.


The next day she gets a fever and a cough

and has to be hospitalized again.

 

#ThePruneBellyGirl #PruneBelly #PruneBellySyndrome #rarediseases #survivor #childhood #handicap #autobiography 

 

These poems are originally written in Swedish and translated by myself. So if the translation sounds weird - please just laugh, or cry, or just shake your head and move on to the next poem, hoping for a better translation there... Thank you for your patience, and for following my story! By the way - my lyrics sometimes sounds weird in Swedish too...


 

Comments

Post a Comment

Popular posts from this blog

No. 1: New-born

Image
The year of grace 1965, July 7, by the way, it is Wednesday and the time is 11:13 a.m. At Umeå Hospital, at the maternity ward, a girl is born. A girl with a prune belly. Sixty years later it is time to write her story. The story of the girl with the prune belly. It was about time then. That it was written. Maybe at the last moment.   #ThePruneBellyGirl #PruneBelly #PruneBellySyndrome #rarediseases #survivor #childhood #handicap #autobiography    These poems are originally written in Swedish and translated by myself. So if the translation sounds weird - please just laugh, or cry, or just shake your head and move on to the next poem, hoping for a better translation there... Thank you for your patience, and for following my story! By the way - my lyrics sometimes sounds weird in Swedish too...
Read more

No. 14: Teachable

Image
The girl is almost 10 months old. Diary entry: "After consulting Dr. Å. Andersson, the catheter was to be removed. This was done by the patient herself without our help." A few days later: "The patient has 'pulled' the catheter 2 more times herself." The girl is apparently teachable. A talented girl. Without a catheter, much time is spend sitting on the potty! #ThePruneBellyGirl #PruneBelly #PruneBellySyndrome #rare diseases #survivor #childhood #handicap #autobiography #disability #childrenshospital These poems are originally written in Swedish and translated by myself. So if the translation sounds weird - please just laugh, or cry, or just shake your head and move on to the next poem, hoping for a better translation there... Thank you for your patience, and for following my story! By the way - my lyrics sometimes sounds weird in Swedish too...
Read more

No. 5: Emergency baptism

Image
A day old, the girl is baptized in emergency. The girl is not in distress. Not in need of any emergency baptism. She is already His. He, who has created her. Baptized in the swedish lutheran church. Later coming home to the Catholic Church. You have called me by name. Before You formed me in the womb, You chose me. She already belonged to Him. But okay then. In their distress the distress of others, the baptism gave them comfort. Comfort in their distress. #ThePruneBellyGirl #PruneBelly #PruneBellySyndrome #rare diseases  #survivor #childhood #handicap #autobiography #emergencybaptism    These poems are originally written in Swedish and translated by myself. So if the translation sounds weird - please just laugh, or cry, or just shake your head and move on to the next poem, hoping for a better translation there... Thank you for your patience, and for following my story! By the way - my lyrics sometimes sounds weird in Swedish too...   ...
Read more