No. 10: Coming home

The girl is coming home

for the first time.

In October.

That's when she gets that gold heart.

But she gets so sick

the day after

coming home

that she has to go to the hospital.

The tickets from that day!

"The patient is admitted

for observation and care,

mostly because the mother

feels very stressed

and doesn't believe she's capable

of handling the emergency situation."

The girl stays in the hospital

for almost two months

before she can come home again.

In December.

So there will still be a Christmas,

a merry Christmas

with a child.

Their firstborn girl,

who is a newborn

and five months old.

They take the girl with them

to their grandparents.

On New Year's Eve

they cast tin.

And interpret the figures

as hopeful signs.

After the Epiphany,

she has to go to Lovisa's Hospital in Stockholm again.

For four months.

Then back to the children's clinic in Umeå.

Back to Lovisa's

and then to Karolinska Hospital.

Home for three days.

Then back to the hospital.

And back again.

Like a yo-yo,

the girl with the prune belly

goes from hospital to hospital.

A few days, she stays at home.

During those days,

those poor few days,

the mother will suddenly

be mother and father.

Capable

of being mother and father.

For a few days.

No wonder they are stressed.

 

#ThePruneBellyGirl #PruneBelly #PruneBellySyndrome #rarediseases #survivor #childhood #handicap #autobiography 

 

These poems are originally written in Swedish and translated by myself. So if the translation sounds weird - please just laugh, or cry, or just shake your head and move on to the next poem, hoping for a better translation there... Thank you for your patience, and for following my story! By the way - my lyrics sometimes sounds weird in Swedish too...